top of page
Where to Find Help & Support

If you or someone you love is impacted by Usher syndrome, you are not alone. These organizations offer education, support, advocacy, and research:​​

​Consider Joining the USH Trust

If you or a loved one has Usher syndrome, registering with the USH Trust helps connect our community with critical research opportunities. The USH Trust is a confidential, simple, and secure registry for people living with Usher syndrome. By signing up, you’ll be connected to the global USH community and be the first to know about clinical trials and research opportunities.

Join the USH Trust today to stay informed and be part of the future of USH research.

Usher Syndrome Coalition logo

Building a global USH community, connecting families, and driving research toward treatments and a cure.

Usher Syndrome Society Logo.png

Raising awareness through art, storytelling, and advocacy while funding research and support.

Miami Lighthouse for the Blind logo

A local resource providing programs, training, and support services for people living with vision loss.

Foundation Fighting Blindness logo

A national leader in funding research for treatments and cures for inherited retinal diseases, including Usher Syndrome.

bottom of page